Friday, July 3, 2009

Hollis and High-5's

Yesterday I went in to say hello to Hollis and we worked on high fives for a while.
It's slow reaction, but she does raise her left hand for the magic of the palm slap. One time she really gave it her all with some force.
This is a great sign and one that can hopefully turn into communication. She understands what I say and responds. We still don't have the "yes" "no" communications, but this is a good step.

After the high5's I gave her a dancing lesson on proper body mechanics. We held both hands wide and danced a bit to some music. I introduced her two hands to themselves and told her about bi-lateral symmetry and advised her to work on her right hands range of motion.
It was truly fun.
I am on my way to the hospital right now with some Derailleurs for a drawing experiment.

Saturday, June 27, 2009

Hollis is doing it!

Hello everyone,
Thanks for continually keeping tabs on our lady Hollis.
As per my last visit, just a week or two after this last post, I see her improving quite nicely.
When I entered the room, she was in her chair and her head was not all droopy. Her head was upright and her eyes looking to the right. Her eyes kept that position the whole time. She will usually move her eyes around for me, looking at me, etc. But she was concentrating. It was like she was in a trance. And that trance was the determination to speak. She would repeat her words over and over again, not satisfied by the poor deliveries. She would try to say a sentence, get a few words into it, and purse her lips with a mmmmm sound. Then try again.
A few of the things I thought she was saying was:
"I want to go home"
"I want my mom"
"Elizmmmm" I really feel like she was mouthing my name but didn't quite understand the "z" sound yet.
She is determined.
I had a few dreams about her in the last few weeks where she was talking and I was surprised and she was like, " Did you think I would forget how to speak?" all sassy like.

This is great. I was talking to an old friend and he has seen many brain injuries. He wanted to clarify that she should definitely be read to but to keep it fairly simple. Not simpleton, just not Tolstoy etc. He said everything is all jumbled up in there and the clearer the material, the easier it is to make a cognitive map.

And now on to the storage thing.

First of all, I would like to apologize because I didn't super proofread the previous post before I posted it. My computer broke, so I am not online all the time, and I felt like I owed you all an update while I was at a computer. I misscommunicated or even created unintentionally this "heating up" of the storage debate.
I feel like it is my intention to relay what is going on with Hollis to her support network and in the process I hurt Diane's feelings. This is the last thing I want to do.
The reason I said there was a debate at all is because there was. I am a middlewoman and I needed to get more input so I knew how to deal with the upset that came when I said I would open up the storage unit at all.
Diane isn't an evil caretaker, wanting to sell off all her belongings. She is the most sturdy and dedicated woman. She is amazing and I have SO much respect for her. She wants to send the important stuff home for Hollis to be around and use when she is able. She also needs to tie up loose ends and cut unnecessary spending.

I posted the wrong wording. I made it look like two sides are fighting, but we are all working together, and sometimes ideals differ. Hollis put me as a person who could get into her storage unit before all this happened. I agree we should keep her things together so she has memory capsules to peruse. I also agree that paying the rent on her storage unit could be unnecessary or burdensome. I have some of her belongingsin my room from before she left because we were sharing a room. I need to put those in her storage unit. In doing so, I will also assess the situation. I will not snoop or toss or sell any of her things. Just see what that room holds.

In conclusion, I don't need anyone to "weigh in" on the debate anymore. It is not a debate, and the consensus among us all is that Hollis' belongings are for her and they are safe.

I apologize to Diane and the rest of you for this unnecessary drama.

Friday, June 19, 2009

New Info on Hollis:

Hello hello,
It has been quite a month of not updating this website. Sorry to keep you all out of the loop. It has been a time for me to get back on with my own life. If you are interested in the daily medical updates, her mother, Diane, keeps the family blog helpholligethome.blogspot.com frequently updated while she waits patiently in the hospital room.

Now on to the good news.
As we know with brain injuries, these things take time. Constant updates would be quite boring but over the long span of things, the progress is amazing.
The last couple weeks have been showing great leaps.
It started with her sipping liquid with a spoon. The first thing that someone fed her was a sip of Framboise, one of her most favored liquids.
Then a few days later she was slurping up some applesauce.
This is a great thing because each time I go I remind her that if she can start swallowing and eating, she can get the tracheotomy out.
One less string attached to the hospital should improve her mental environment.
Previously, her right arm had been extremely tight and curled to her body. This trauma position has been something the visitors have been trying to work on, relaxing her arm. In the past few weeks this arm has been much more relaxed. Her left arm has been feeling her right arm, as if she is aware that it is misbehaving. This left arm also explores your hands and her traech tube. It shows her awareness is sharpening.

As I get more used to visiting Hollis in the state she is in, I have learned a few things on how to talk to her even better than before. I felt in the first few months that when I went to see her I just tried to pour out all of my energy to her, coaxing her through a dark tunnel into the light. This always resulted in the feeling of incredible gravity after the visit. It took quite a while to get back to normal. Well, a couple of weeks ago we had a multiple person craniosacral therapy session, and one of the therapists talked to me about it later. She advised me not to give her too much. She said that I should maintain a normal relationship and see if I can reach her through the subconscious. It is along the same lines of not babying her. Talk to her like you would last year. If you know her, you know how headstrong she is and that baby talk pisses her off. I really tried not to talk to her that way, but there was a certain patronizing tone, a tone of hope. I went in later in the week and sat by her side in her chair, peeking my head under her droopy head and told her everything about what is going on outside her window. Her head doesn't really stay up on her own for very long, but her eyes will look at you and she will respond to your stories. She communicates when she understands a story and it makes her remember. This visit she was smiling and clearing her mouth. Swallowing her saliva. This is a great sign. I feel like she is close to forming words.

One of my visits, I grabbed an In Touch Magazine and sat in her bed and read out loud to her. She was checking out all the pictures and kept her attention the whole time. I think she really liked it. I brought in the cover of the Guardian that The Derailleurs were featured. She started crying. She is there. Our job is to keep her updated on the outside world.

Speaking of outside world, her mother's plans for her is to take her to Tennessee when she is able to have homecare. There is a debate now on what to do with the stuff in her storage unit. Her mother would like to have a big garage sale and her close friends would like to chain themselves to the storage unit. It is heating up. This is the official opening of the forum on this topic. Talk amongst yourselves and send a representative with your argument.

In conclusion, bring intellectually stimulating media, conversations of the outside world, and talk to her as if she can respond to you, like you were hanging out. Get over your sadness and despair because yours couldn't possibly match her own.

Saturday, May 9, 2009

News on the Austin Fundraiser:

From Face of DPW:

Austin has postponed Hollis' Fundraiser until after Burning Flipside.
But we can still make her some dough.
It's online raffle time!
The prize: 1 ticket to Flipside
Raffle tickets are $5 a piece.
No one person can spend more than $80 on raffle tickets.
Please honor this.
I will be collecting money through my paypal account.
FacetiousTexan@gmail.com
I will close the raffle next Saturday night at midnight.
Anne Bonny and I will doll out each raffle ticket according to how much money you spend (paypal will notify me each time someone adds money) and put it in a bucket.
We just love buckets.
The next day during DaFT at the Flipside Warehouse we will draw the name for the ticket.
I will announce online who the winner is.
100% of the money for this raffle is going to Hollis Hawthorne.
http://friendsofhollis.blogspot.com
Please repost everywhere.
I want to make Hollis as much money as possible, and there's only a week to pull this off.
Thanks guys, and good luck!
Love,
Face

Wednesday, May 6, 2009

Momentum Magazine blurb reguarding Hollis:

Momentum Magazine is a very fabulous publication and has done a follow up story on Hollis' situation.
Here is the Link:
http://www.momentumplanet.com/love-new-black

Sunday, May 3, 2009

You thought I forgot:

I promised the new total a week ago.
Well, ARE YOU CURIOUS?
drumroll.......
....................
................

Friends of Hollis has brought in:
$109,243
Help Holli Get Home has brought in:
$30,306

That makes the total money raised:
$139,549
just $60,000 shy of our $200,000 goal.
That's pretty darn good it you ask me.

Wednesday, April 22, 2009

A new total:

I received an email yesterday asking for the new total.
I apologize to everyone for not keeping up with the tally marks.
The donation station was flying off the hook for three solid weeks.
At the same time as we reached $100,000, Hollis arrived safe in our arms. Shortly after that there have been many benefits all over the place, and the job here at Friends of Hollis moved from behind the screen to hand in hand. The pay pal went from 7 donations every ten minutes to a few a day, steadily rolling in. I know that the first three weeks were so amazing because your eyes just lit up every time you checked in and found that the money coming in had doubled, then tripled. It seems like a let down if it isn't in the thousands. But that is incorrect thinking.
Every donation counts and each cent is a vote for Hollis to reach health.

Today I am getting ready for The Cougar Run where The Derailleurs are performing.
check it out here:
http://agentchaosproductions.blogspot.com/2009/04/cougar-run-today.html

Then I will track down a new total for you all.
It's on the way.

New York benefit on May1st:

May Day Masquerade!!!
A Benefit for Hollis Hawthorne & Pre-Shpongle Extravaganza..


Friday May 1st in Williamsburg, Brooklyn

Featuring Live Performances By:

Disco Monkeys &
Your Boyfriend's Band Sucks!


Psytrance, Dub, Electro, Tech House & Drum n' Bass DJs:

Liquid Kids (DJ Zola Vs. Drift Dodgers) http://www.myspace.com/driftdodgers
DJ HiFONIX
(NYCRAVERS) http://www.myspace.com/djhifonix
Higher Nebulae http://www.jambase.com/Artists/61054/Higher-Nebulae
DJ Stress (2Tuff, Alteration)
Todd Fatjo (Jack Productions, Dealin' Records) http://www.myspace.com/JackProductions
Morgan Stoner
(Funky Communication, Team Ewok)
DJ Atom C
(NYCRAVERS) http://www.djatomc.com
Reverend Dr. Shamus
(PsySystem/Kostume Kult)

Live Art Performances, Canvas & Bodypainting provided by ART BATTLES! (ArtBattles.com)

OPEN BAR, ALL BEER & LIQUOR 11 - 12!

Bodypainted Dancers, Poi Spinners, Giveaways and much more!

We have a great 1000-person capacity space with a balcony, separate bar with seating and VIP room!


The party also has a greater meaning, it is a benefit for Hollis Hawthorne. Hollis is an incredible, innovative artist, dancer and Burning Man worker who was hit by a bus on February 28th while riding a motorbike in India. She has been in a coma ever since, and her friends and the Burning Man community have raised over $100,000 to transport her back to the states and for medical expenses.

She seems to be improving slowly and is opening her eyes, responding to stimuli, making verbal noises and moving fingers and toes on command. She is currently at St. Luke's hospital in San Francisco and the goal is to raise $200,000 for her complete rehabilitation and care. All proceeds from the event will go toward this fund.

The story has completely captivated us as we've learned of the beauty of this person and about the incredible response from her friends and the entire tribe. It is a moving testament to this great woman and the huge, powerful family that she is a part of.


http://theliquidkids.wordpress.com/2009/04/14/the-liquid-kids-presentpre-shpongle-underground-warehouse-partyburner-benefit-for-hollis/

Tuesday, April 21, 2009

Acupuncture Wednesday

Hollis will be treated at 6pm wed. so please refrain from visiting.

Friday, April 17, 2009

Austin Benefit postponed due to inclimate weather:

From one of the organizers of the Austin Hollis Benefit:

Hi kids,
I am sad to say, the benefit for Hollis needs to be postponed.
Between the torrential thunder and lightening storms AND tornado warnings, it's just too dangerous.
In addition, last night, the community lost a friend.
Caleb "Shooter" Schaber took his last call.
Damn near everyone involved with the benefit for Hollis is now in mourning.
Hollis' bills aren't going anywhere.
We will announce the rescheduled date as soon as we have it.
Thanks for being understanding, gang.

Acupuncture on saturday.

Saturday for a couple hours Hollis will be getting acupuncture.
Starting at 3:30, Hollis will not be accepting visitors until 6pm.

She is becoming more and more aware. She seems to be more present. Her eyes are opening together and wide when I walk in. Her noises are getting more expressive. She had been kicking her legs, especially her left one. The doctors have been using this table that they strap her to that slowly stands up, so she can get used to the feeling of gravity under her feet.
I think about how it seems like it is taking so long for her, and how things are still in such shambles of Hollis' former self. Then I think about how each week progress builds and builds and is just a very slow process. I think about the first time I saw her compared to the last time and there have been incredible steps taken. I must be patient and consistent. Breath and wait.

Tuesday, April 14, 2009

From Face:

We got a Burning Man ticket to raffle!
So that's one ticket to Flipside, and one ticket to Burning Man for Hollis' fundraiser Saturday in ATX!

Monday, April 13, 2009

Austin Benefit: the flier!

This Saturday:





April 18th Austin Texas:
early eavning till late
@ the burning flipside wherehouse off of springdale and airport in east austin
featuring:
THAT Damned Band
GutBunny Revival
Black Label Bike Club will have their freak bikes, tall bike jousting, chicken shit kino, and freak bike rides for donation
face camp will be set up for chillin out in
there will be a raffle with many awesome prizes
a possible dance troop
wrapped up with a movie night featuring "The Jerk"

ANY performers are welcome to come and show their stuff, just email Anne Bonny: chickenmcfetus@gmail.com
(looking for musical and circus performers, other ideas welcome of course)

Saturday, April 11, 2009

Tonight! Lost Vegas @ Cellspace


Lo$t Vegas is a benefit for the Swimming Cities of Serenissima
2050 Bryant @ 19th
9pm dress to the nines$

Lineup:
Mark Growden, Mongolounge, The Cheese Puffs (Hollis co-founded this dance team), Otto Von Danger, Tango #9, Wink and Yoni, Freaktronic, Sparkle Motion, and trapeze by Miriam Telles.


The games this year:

Cockroach Racing, Quantum Dating Game, Poke-her, Human Wheel of Death, Rat Roulette, Craps And much much more!!!!!!




FOR LOTS MORE INFO:

http://chickenjohn.wordpress.com/

Friday, April 10, 2009

Hollis Update:

Tonight Hollis is getting acupuncture, so there will be NO visitors after 6pm.

Yay!

ps.
Come to Lost Vegas tomorrow!

Wednesday, April 8, 2009

And now for something different: Lost Vegas

If you didn't know, Harrison was going to go to Slovenia after India to work on a artboat project before Hollis' accident occurred. The project is called the The Swimming Cities of Serenissima. It is headed up by the world renown artist Swoon and also Chicken John. Many of our bay area friends are going to meet up with the project to build it and sail it down to Venice. The goal is to do shows along the way, and end at the Venice Beinalle, and crash the party.
Harrison chose to drop the next six months of his international artstar life to stick by Hollis' side and see her through the fog. (clapclapclap)



Last week the funding was severely cut right as they secured a spot to build in eastern Europe.
This Saturday there is benefit at Cell Space called LOST VEGAS.
This occasion calls for high heels and sequins.
You can bet on cockroach racing or rat roulette.
Watch Hollis' dance team and showgirls extraordinaire, The Cheese Puffs.
See Otto Von Danger jump the Ramp of Death.
Listen to the soothing sounds of the Devo lounge cover band, Mongolounge.
Mark Growden was just added to the bill.
Get married in the chapel.
Throw pies at Chicken John.
Sounds fun, eh?

Here are pictures of the last few Lost Vegas events:
http://www.flickr.com/photos/rayndrahps/sets/72157600332910955/
http://www.flickr.com/photos/laughingsquid/sets/72057594107873149/

check it out on Facebook:
http://www.facebook.com/home.php?#/event.php?eid=99983607432&ref=nf

New protocol for visiting Hollis:

Hollis had a sputum culture and she still has a lung bug from India. ( I forgot the name.)
The bug is really resistant to antibiotics, and while visiting her, you don't want to catch it. Visitors are asked to wear gloves and a mask while touching her to prevent catching it themselves. It's up to you to prevent yourself from getting it. Bummer, huh?

Monday, April 6, 2009

A video tour of the Cirkus Carnival:

Karen sent this to me. It was good to see the layout because I couldn't make it.

I walked in on saturday...

And there were a bunch of balloons on the wall and Hollis' was holding one in her sleeping hand. And then I noticed she had clown make up. It was actually pretty cute. When she woke up I asked her who did that to her and showed her in the mirror.
Then I found a picture on facebook.
Robin Hood, you are caught red handed!






Friday, April 3, 2009

Hollis Update:

Yesterday Hollis received her first small dose of Ritalin, an agent used to try and wake her up. It might work in a few days or instantly or not at all. There is still some residual blood in her head from the accident, but when that clears, she should see a rapid improvement.
The medicine so far has seemed to make her miserable and she has a fever. Best of wishes to Hollis and this terrible state she is going through.
Thanks for checking in.

Thursday, April 2, 2009

We Need Paparazi:

A camera for the room so we can document everyone coming to visit Hollis, and especially their gifts they bring and more especially their outfits. Upload them for safe keeping. Diane will have a computer from her husband in a week.

Shout out:

I want to thank the two members of Dark Dark Dark who visiting Hollis on Tuesday and playing her some peaceful music. By you creating those mellifluous vibrations in the room, her soul is filling out her body. Her mind is expanding back from of the convoluted space she has been in.

Franny's Raffle was a success!!

Last night they called the winners of the month long raffle held by Franny Corsick.

Grand total with Hollis's Raffle earnings is $2,230.00!!!!!!!


This will be a nice padded cushion for Hollis' long recovery back to rockstar status.
Thank you Franny and all of the amazing retailers and artisans who donated their services.
With a list of prizes that long, no wonder it was such a success!

Not to be outdone:

Hearing about all the cities who are putting on fundraisers, Seattle got miffed that they didn't join the cause and so they are not only doing one benefit, but two!
A lady named Heather Miles is putting the two together. They are planning a small bar event in May, and a very large, outdoor, full-day circus/concert event + raffle in June.
If you live in Seattle, search this woman out and join up on the team. In a recession, there are a bunch of people with idle time on their hands. Let's put those hands to work.
Heatherly is looking for a venue at the moment.
to contact her:
windspryte2000@yahoo.com

And on the tip of fundraisers, we are not out of the woods of wonderfulness yet!
We have many still coming up. Here is a schedule:

April 4th Western Kentucky University:
Healing Hollis- A night of Comedy, Dance, and live music.
@ Russell Miller Theater
7pm Silent Auction starts
8pm show starts

April 18th Austin Texas:
early eavning till late
@ the burning flipside wherehouse off of springdale and airport in east austin
featuring:
THAT Damned Band
GutBunny Revival
Black Label Bike Club will have their freak bikes, tall bike jousting, chicken shit kino, and freak bike rides for donation
face camp will be set up for chillin out in
there will be a raffle with many awesome prizes
a possible dance troop
wrapped up with a movie night featuring "The Jerk"

ANY performers are welcome to come and show their stuff, just email Anne Bonny: chickenmcfetus@gmail.com
(looking for musical and circus performers, other ideas welcome of course)
everything will be on donation and there will be info on hollis' story for anyone to check out.

May 1st, New York City:
I just received word today that two birthday folks are throwing a huge warehouse party and wanted to turn it into a benefit for Hollis. They heard about her inspiring message and want to help her out on this slow recovery. Isn't that so sweet you get a cavity?
Anyways, Caeli Higgins got in touch with me and told me that she is throwing an event in a warehouse that can hold 1,000 people and she wants to yell it from the rooftops.
If you want to link up with actions going on in New York, or if you are and artist/dj/performer/painted lady, get in touch with her.
caeli426@yahoo.com
The facebook event is:
http://www.facebook.com/group.php?gid=104929320328


ps: Oakland, I want some words, a story chronicling the benefit last Saturday. The Giant Get Well Soon Card looks amazing in Hollis room.

Wednesday, April 1, 2009

Reminder of Excitement!

Tonight Franny will reveal the winners of the raffle:

Raffle night 7:30pm - 9:00 The Bus Stop Gallery 135 Dore off Folsom between 9th and 10th.


If you don't remember the prizes:
http://friendsofhollis.blogspot.com/2009/03/tuesday-is-raffle-day-at-amnesia.html

I bought two so I could win the Burning Man ticket (I have never been) and the Hot Air Baloon Ride. cross your fingers. I am crossing my toes. If you can't make it, hopefully you filled out the back so she can get in touch with you for your prize.